Make the Most of Your Healthcare Visits
You may remember a time when doctors made all the decisions. This practice has changed, and now patients want to become involved in their treatment plans. You and your healthcare team will share the responsibility for making decisions about your care.
It’s important to talk openly with your doctor about your goals and priorities. Working closely with your healthcare team lets you explore all your options to find what works best for you.
We've created this discussion guide to help you get the conversation started:
Questions about diagnosis
- How is multiple myeloma different from other cancers, like breast or lung cancer?
- How would you describe my risk level?
- What is my prognosis (outlook)?
- What doctors will be involved in my care?
- Will there be one doctor or nurse coordinating my care?
Questions about testing
- What should I expect when I go for testing?
- What types of tests will I undergo, and how often?
- What will I need to do to prepare for these tests?
- Where will I go for these tests?
- When and how will I get the results of my tests?
- Can you explain what my results mean after each test?
Questions about treatment
- What types of treatments are available for multiple myeloma? Could a stem cell transplant be an option for me? When could CAR T cell therapy fit into my treatment plan?
- What are the risks and benefits of each treatment?
- What treatment do you recommend, and why?
- Will I be able to continue my normal work schedule with this treatment?
- What are your thoughts on visiting a multiple myeloma specialist? Is there a multiple myeloma specialist you would recommend and would coordinate with?
Questions about paying for treatment
- Is this treatment covered by my insurance?
- Are there patient assistance programs?
- Is there a financial counselor or someone in the office I can speak with about affording treatment?